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Children in Medical ResearchAccess versus Protection$
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Lainie Friedman Ross

Print publication date: 2006

Print ISBN-13: 9780199273287

Published to Oxford Scholarship Online: May 2006

DOI: 10.1093/0199273286.001.0001

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PRINTED FROM OXFORD SCHOLARSHIP ONLINE (oxford.universitypressscholarship.com). (c) Copyright Oxford University Press, 2021. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in OSO for personal use. date: 20 October 2021

Lead Abatement Research

Lead Abatement Research

(p.206) 12 Lead Abatement Research
Children in Medical Research

Lainie Friedman Ross (Contributor Webpage)

Oxford University Press

In August 2001, the Maryland Court of Appeals harshly criticized the Kennedy Krieger Institute of Johns Hopkins University for knowingly exposing poor children to lead-based paint. This chapter examines the court’s ruling that parents cannot consent to nontherapeutic research that poses any degree of risk to children subjects. It argues that the court was mistaken because parents legally can and morally should be allowed to consent to some nontherapeutic research. The research methodology to determine whether the research is approvable under the current federal regulations is also examined to refine what is meant by being ‘at risk’ for a ‘disorder or condition’.

Keywords:   lead abatement research, pediatric research, children, parental consent, nontherapeutic research, risk

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