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Children in Medical ResearchAccess versus Protection$
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Lainie Friedman Ross

Print publication date: 2006

Print ISBN-13: 9780199273287

Published to Oxford Scholarship Online: May 2006

DOI: 10.1093/0199273286.001.0001

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Should We Provide Healthy Children with Greater Protection in Medical Research?

Should We Provide Healthy Children with Greater Protection in Medical Research?

Chapter:
(p.76) 4 Should We Provide Healthy Children with Greater Protection in Medical Research?
Source:
Children in Medical Research
Author(s):

Lainie Friedman Ross (Contributor Webpage)

Publisher:
Oxford University Press
DOI:10.1093/0199273286.003.0005

This chapter examines whether Subpart D of the federal regulations on human subject protections provides appropriate protection for all children, when research offers no prospect of direct benefit (also known as ‘nontherapeutic research’). It shows that Subpart D provides greater protection for healthy children and allows children who have a disorder or condition to be exposed to greater risk of harm. This double standard is unjust because the distribution of burdens falls disproportionately on children with a disorder or condition. Suggestions for revising the federal regulations are presented.

Keywords:   healthy children, medical research, nontherapeutic research, risk, Subpart D

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