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Chronic and Terminal Illness: new perspectives on caring and carers$
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Sheila Payne and Caroline Ellis-Hill

Print publication date: 2001

Print ISBN-13: 9780192631671

Published to Oxford Scholarship Online: November 2011

DOI: 10.1093/acprof:oso/9780192631671.001.0001

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PRINTED FROM OXFORD SCHOLARSHIP ONLINE (oxford.universitypressscholarship.com). (c) Copyright Oxford University Press, 2021. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in OSO for personal use. date: 23 October 2021

A longitudinal study of carers providing palliative care

A longitudinal study of carers providing palliative care

(p.64) Chapter 4 A longitudinal study of carers providing palliative care
Chronic and Terminal Illness: new perspectives on caring and carers

Karen Rose

Oxford University Press

This chapter focuses on carers in palliative care, specifically those caring for people dying of cancer. It deals principally with what the experience of caring was like for carers of patients with incurable cancer. The chapter draws on longitudinal study using qualitative approaches, predominantly through interviews. The study used in this chapter took place in north-west England, with participants from various sources, including district nurses, palliative care service providers, and religious leaders. Data were collected from twenty-one primary care givers and eleven secondary carers. Families included in this study were either actively caring for a patient during the interview or were within one year of bereavement. In addition to the interviews, the study also adopted a triangulation strategy, the Mood Adjective Check List, which was intended to provide a quantitative adjunct to a qualitative study. In the study used in this chapter, repetitive listening to the interview tapes was undertaken in order to determine the convergence and divergence of the emerging themes that help define the data needed.

Keywords:   carers, palliative care, cancer, caring, primary care givers, secondary carers

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