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Crossing OverNarratives of Palliative Care$
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David Barnard, Anna M. Towers, Patricia Boston, and Yanna Lambrinidou

Print publication date: 2000

Print ISBN-13: 9780195123432

Published to Oxford Scholarship Online: November 2011

DOI: 10.1093/acprof:oso/9780195123432.001.0001

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PRINTED FROM OXFORD SCHOLARSHIP ONLINE (oxford.universitypressscholarship.com). (c) Copyright Oxford University Press, 2021. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in OSO for personal use. date: 15 April 2021

Joey Court: Death of a Child

Joey Court: Death of a Child

(p.355) 20 Joey Court: Death of a Child
Crossing Over

David Barnard (Contributor Webpage)

Patricia Boston R.N.

Anna Towers

Yanna Lambrinidou

Oxford University Press

This chapter discusses Joey Court, a child with an unusual and invariably fatal medical disorder. Joey was expected to die from the first year of his life. Despite the severity of his condition, his parents treated Joey like a normal child. Joey lived for nine years without the aid of life-prolonging treatment. During this period, his parents made a difficult decision to withhold life-prolonging treatment and admitted Joey to the home care services of hospice. He lived for another five months while relying solely on palliative interventions. The chapter narrates how the family coped with the death of a child. It touches on the different themes of pediatric hospice care such as the decision to terminate aggressive treatments, the anticipation of death, the grief and bereavement of all the family members, and the question “why?”

Keywords:   medical disorder, child, life-prolonging treatment, child death, pediatric care, anticipation of death, terminate treatments, grief, bereavement

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