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Issues in Palliative Care Research$
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Russell K. Portenoy and Eduardo Bruera

Print publication date: 2003

Print ISBN-13: 9780195130652

Published to Oxford Scholarship Online: November 2011

DOI: 10.1093/acprof:oso/9780195130652.001.0001

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Issues in Measuring Family Care Needs and Satisfaction

Issues in Measuring Family Care Needs and Satisfaction

(p.203) 13 Issues in Measuring Family Care Needs and Satisfaction
Issues in Palliative Care Research

Russell K. Portenoy

Eduardo Bruera

Oxford University Press

Findings specific to family care needs indicate that families have needs in two domains: concerns about patient care and specific requirements of their own. A consistent theme in the family needs literature is the importance of communication between health professionals and families. Researchers and clinicians who measure these needs must be alert to the comprehensiveness of the domain measured, the clarity with which needs and need fulfillment rankings are made and compared, and unique reliability issues associated with needs assessments. Family care satisfaction appears to be best measured by a multiple-item tool using a direct, multidimensional approach. Although on the surface, family care satisfaction may appear to be a construct that shows little variation, it may be a useful way of identifying family members who are hurting the most and who may not have other ways of expressing their concerns.

Keywords:   families, communication, patient care, family care satisfaction, needs assessments

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