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Issues in Palliative Care Research$
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Russell K. Portenoy and Eduardo Bruera

Print publication date: 2003

Print ISBN-13: 9780195130652

Published to Oxford Scholarship Online: November 2011

DOI: 10.1093/acprof:oso/9780195130652.001.0001

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Research in Advance Care Planning

Research in Advance Care Planning

(p.261) 17 Research in Advance Care Planning
Issues in Palliative Care Research

Russell K. Portenoy

Eduardo Bruera

Oxford University Press

Planning for illness involving decisional incapacity has been widely endorsed, at least in principle. How best to accomplish it has been less clear, however. To remedy this lack of practical guidance, considerable research has been devoted to the field. This chapter addresses seven areas of research in advance care planning, each of which has enjoyed progress but needs further research: theoretical development of the rationale for advance care planning; considerations regarding the conditions under which advance directives can be authentic; epidemiological tracking of indicators and outcome measures; issues concerning ethnicity and culture; guidance for clinical practices; outcome measures; and policy development. Research in advance care planning has covered a range of methodologies, from applied philosophy to epidemiology and survey methodology, from ethnology to economics and policy analysis.

Keywords:   advance care, ethnicity, applied philosophy, policy analysis, advance directives

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