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Issues in Palliative Care Research$
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Russell K. Portenoy and Eduardo Bruera

Print publication date: 2003

Print ISBN-13: 9780195130652

Published to Oxford Scholarship Online: November 2011

DOI: 10.1093/acprof:oso/9780195130652.001.0001

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Research in Pediatric Palliative Care

Research in Pediatric Palliative Care

(p.355) 23 Research in Pediatric Palliative Care
Issues in Palliative Care Research

Russell K. Portenoy

Eduardo Bruera

Oxford University Press

The World Health Organization (WHO) defines palliative care as the active total care of patients whose disease is not responsive to curative treatment. Control of pain, other symptoms, and psychological, social, and spiritual problems is paramount. Multiple perspectives, obtained through a variety of research methods, are necessary to provide a greater understanding of the whole person. The goal of palliative care is to achieve the best quality of life for patients and their families. In pediatric palliative care, where systematic knowledge development is only in its infancy, such perspectives become even more critical. This chapter identifies extant research in pediatric palliative care and suggests additional methods or approaches for gaining multiple perspectives.

Keywords:   World Health Organization, quality of life, pain control, pediatric palliative care, symptom management

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