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Ethics and Epidemiology$
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Steven S. Coughlin, Tom L. Beauchamp, and Douglas L. Weed

Print publication date: 2009

Print ISBN-13: 9780195322934

Published to Oxford Scholarship Online: September 2009

DOI: 10.1093/acprof:oso/9780195322934.001.0001

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Epidemiology and Informed Consent

Epidemiology and Informed Consent

(p.71) 4 Epidemiology and Informed Consent
Ethics and Epidemiology

Jeffrey P. Kahn (Contributor Webpage)

Anna C. Mastroianni

Oxford University Press

Informed consent is a central concept and practice in the protection of both patients receiving clinical care and individuals participating in research. What began as a commitment to ethical principles has found its way into legal cases concerning the physician-patient relationship, federal policy, and international standards for ethical research on human subjects. Given the tension between informed consent and much of epidemiology, this chapter analyzes three core questions: (1) Does epidemiology require informed consent? If so, (2) why and under what conditions? Finally, (3) what special issues, if any, does epidemiology raise for the concept and practice of informed consent?.

Keywords:   epidemiology, informed consent, epidemiological research, self-determination, ethical principles

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