Ethical Issues in the Interaction with Research Subjects and the Disclosure of Results
Ethical Issues in the Interaction with Research Subjects and the Disclosure of Results
Developments in epidemiologic methods such as large-scale cohort studies and the increased use of molecular and genomic samples have created new challenges in disclosure. Since epidemiology is focused on populations, disclosure should be motivated by population-level bioethics, public health ethics, and clinical bioethics. This chapter reviews various aspects of epidemiologic studies that affect the reporting of results: (1) subject recruitment and informed consent, (2) privacy and confidentiality, (3) interpretation of test and study results, (4) communication of individualized test results, and (5) communication of study results.
Keywords: epidemiologic studies, subject recruitment, informed consent, privacy, confidentiality, communication of results
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