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Ethics and Epidemiology$
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Steven S. Coughlin, Tom L. Beauchamp, and Douglas L. Weed

Print publication date: 2009

Print ISBN-13: 9780195322934

Published to Oxford Scholarship Online: September 2009

DOI: 10.1093/acprof:oso/9780195322934.001.0001

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Ethical Issues in Genetic Epidemiology

Ethical Issues in Genetic Epidemiology

(p.182) 9 Ethical Issues in Genetic Epidemiology
Ethics and Epidemiology

Laura M. Beskow

Wylie Burke

Oxford University Press

This chapter examines three selected issues that, although not unique to genetics, are becoming increasingly important in genetic epidemiology: federal policies for widespread data sharing, the use of “race” as a variable in research involving genetics, and concepts of community engagement. These issues are interrelated and represent areas of tension between participant protection and the quality and efficiency of research.

Keywords:   epidemiology, genetics, data sharing, race, genetic research, community engagement

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