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The Edge of MedicineStories of Dying Children and Their Parents$
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David J. Bearison

Print publication date: 2012

Print ISBN-13: 9780195389272

Published to Oxford Scholarship Online: September 2012

DOI: 10.1093/acprof:oso/9780195389272.001.0001

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PRINTED FROM OXFORD SCHOLARSHIP ONLINE (oxford.universitypressscholarship.com). (c) Copyright Oxford University Press, 2021. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in OSO for personal use. date: 13 April 2021

Families, Friends, and Hospital Practices

Families, Friends, and Hospital Practices

(p.125) Chapter Five: Families, Friends, and Hospital Practices
The Edge of Medicine

David J. Bearison

Linda Granowetter

Oxford University Press

This chapter is in two parts. The first part is about patient's and parent's narratives about what it is like for them interacting with their family and friendsaround the myriad issues that inevitably occur in children's and infant's end-of-life care.The second part is patient's and parent's narratives about problems and recurring frustrations relating to the medical staff and institutional practices as they bear upon end-of-life pediatric care.

Keywords:   medical staff, institutional practices, interacting, frustrations, end-of-life

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