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Patient Participation in Palliative CareA voice for the voiceless$
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Barbara Monroe and David Oliviere

Print publication date: 2003

Print ISBN-13: 9780198515814

Published to Oxford Scholarship Online: November 2011

DOI: 10.1093/acprof:oso/9780198515814.001.0001

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(p.193) 14 Conclusions
Patient Participation in Palliative Care

Alwyn Lishman

Oxford University Press

This concluding chapter discusses the personal experience of the author in dealing with palliative care and the concept of the user's voice, which is widely welcomed in seeking to refine the way forward. It reveals that the common thread that unites the chapters in this book is a deep humanity, which is focused on improving the lot of the terminally ill. The chapter also shows that palliative care needs to operate within complex structures: organizational and even political. Alliances between diverse groups of people must be formed and financial limitations faced.

Keywords:   personal experience, palliative care, user's voice, deep humanity, terminally ill, complex structures, alliances, financial limitations

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