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Shared Decision Making in Health CareAchieving evidence-based patient choice$
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Glyn Elwyn, Adrian Edwards, and Rachel Thompson

Print publication date: 2016

Print ISBN-13: 9780198723448

Published to Oxford Scholarship Online: September 2016

DOI: 10.1093/acprof:oso/9780198723448.001.0001

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PRINTED FROM OXFORD SCHOLARSHIP ONLINE (oxford.universitypressscholarship.com). (c) Copyright Oxford University Press, 2021. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in OSO for personal use. date: 22 October 2021

The science and art of partnering with patients in research

The science and art of partnering with patients in research

(p.70) Chapter 12 The science and art of partnering with patients in research
Shared Decision Making in Health Care

Kyla Donnelly

Pearl Brady

Oxford University Press

Recently, there has been unprecedented commitment to partnering with patients to shape research from conceptualization to dissemination. The underlying belief is that engaging patient partners can influence research to be more patient-centered, effective, and ultimately useful to the broader community. Some evidence suggests partnership with patients improves the relevance of the research agenda, the appropriateness of research conduct, and the dissemination and uptake of findings. Yet, practical challenges for both patients and researchers—uncertainty about the process, timeline implications, resource limitations—impede progress. This chapter provides an overview of the ‘what, when, and how’ of partnering with patients to accelerate impactful and valued research across contexts.

Keywords:   Patients, patient partners, patient engagement, shared decision making, community based participatory research

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