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Shared Decision Making in Health CareAchieving evidence-based patient choice$
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Glyn Elwyn, Adrian Edwards, and Rachel Thompson

Print publication date: 2016

Print ISBN-13: 9780198723448

Published to Oxford Scholarship Online: September 2016

DOI: 10.1093/acprof:oso/9780198723448.001.0001

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PRINTED FROM OXFORD SCHOLARSHIP ONLINE (oxford.universitypressscholarship.com). (c) Copyright Oxford University Press, 2021. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in OSO for personal use. date: 19 October 2021

What can patients and patient groups do to promote shared decision making?

What can patients and patient groups do to promote shared decision making?

(p.277) Chapter 42 What can patients and patient groups do to promote shared decision making?
Shared Decision Making in Health Care

Kristin L. Carman

Thomas A. Workman

Marla L. Clayman

Oxford University Press

At a time when patient and family engagement in health care is rapidly expanding, patients and patient advocacy groups have increasing opportunities to advance shared decision making (SDM). We suggest that patients and patient groups play a critical role in building capacity for SDM in two main ways. Firstly, patients and patient advocacy organizations can prepare patients and families for realizing their roles in the SDM process by utilizing patient and family networks to educate them about SDM. They can help patients become more informed for the trade-off process by clarifying key values and preferences related to specific conditions. Secondly, patients and patient advocacy organizations can serve as partners to health care organizations, researchers, and decision tool developers as they create SDM processes and tools that are patient-centered and likely to be adopted by patients and families. Integrating SDM into health care is necessary to achieve person-centered, high quality care.

Keywords:   Patients, patient advocacy organizations, patient and family engagement, capacity-building, patient networks, preferences, values, patient education, trade-offs

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