- Title Pages
- Dedication
- Preface to the supportive care series
- Preface
- List of Contributors
- Chapter 1 Characterizing care
- Chapter 2 An introduction to the dementias: a clinical view
- Chapter 3 The view of the person with dementia
- Chapter 4 The view of the family carer
- Chapter 5 Offering supportive care in dementia: reflections on the PEACE programme
- Chapter 6 Services for younger adults with dementia
- Chapter 7 Huntington's disease and dementia
- Chapter 8 Patients with Hiv-associated dementia
- Chapter 9 Down's Syndrome and dementia: a framework for practice to support people with Down's Syndrome and dementia living in generic care homes
- Chapter 10 Dementia care in developing countries
- Chapter 11 Ingredients and issues in supportive care for people with dementia: summarizing from models of care
- Chapter 12 Pharmacological management of neuropsychiatric symptoms in people with dementia
- Chapter 13 Hospital admissions in dementia
- Chapter 14 Distress and pain in dementia
- Chapter 15 The role of the family doctor in supportive care for people with dementia
- Chapter 16 Community mental health nursing and supportive care
- Chapter 17From psychological interventions to a psychology of dementia
- Chapter 18 Supportive care: social care and social work approaches
- Chapter 19 Care homes and long-term care for people with dementia
- Chapter 20 Assisted living programmes providing supportive care for dementia
- Chapter 21 Spiritual care of people with dementia and their carers
- Chapter 22 Anticipatory and disenfranchised grief among dementia family caregivers: helping spouse and adult-child caregivers to cope
- Chapter 23 Communicating with people with dementia
- Chapter 24 Maintaining the self in dementia
- Chapter 25 Person-centred care as supportive care
- Chapter 26 Narrative, supportive care, and dementia: a preliminary exploration
- Chapter 27 Persons with severe dementia and the notion of bodily autonomy*
- Chapter 28 Advance care planning: an american view
- Chapter 29 Advance care planning and palliative care in dementia: a view from the Netherlands
- Chapter 30 Living and dying at home with dementia
- Chapter 31 Namaste care and dying in institutional settings
- Chapter 32 The principles and practice of supportive care in dementia
- Index
Characterizing care
Characterizing care
- Chapter:
- (p.1) Chapter 1 Characterizing care
- Source:
- Supportive care for the person with dementia
- Author(s):
Julian C. Hughes
Mari Lloyd-Williams (Contributor Webpage)
Greg A. Sachs (Contributor Webpage)
- Publisher:
- Oxford University Press
This chapter considers the conceptual problem: how do we characterize the care that is due to people with dementia in such a way as to capture all its possible, desirable, and necessary aspects? It identifies the problems lying behind the conceptual question as being to do with the dichotomies and divisions inherent in the different approaches to dementia care. The conceptual conclusion has led in the direction of supportive care, which is a suitable way to characterize the nature of the care owing to people with dementia. Even at this preliminary stage, the supportive care model envisaged allows room for the full benefits of the palliative care approach and good quality end-of-life care to be harnessed, whilst still accommodating the biopsychosocial and spiritual dimensions of holistic care from the time of diagnosis.
Keywords: dementia, patient care, supportive care, palliative, end-of-life care, holistic care
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- Title Pages
- Dedication
- Preface to the supportive care series
- Preface
- List of Contributors
- Chapter 1 Characterizing care
- Chapter 2 An introduction to the dementias: a clinical view
- Chapter 3 The view of the person with dementia
- Chapter 4 The view of the family carer
- Chapter 5 Offering supportive care in dementia: reflections on the PEACE programme
- Chapter 6 Services for younger adults with dementia
- Chapter 7 Huntington's disease and dementia
- Chapter 8 Patients with Hiv-associated dementia
- Chapter 9 Down's Syndrome and dementia: a framework for practice to support people with Down's Syndrome and dementia living in generic care homes
- Chapter 10 Dementia care in developing countries
- Chapter 11 Ingredients and issues in supportive care for people with dementia: summarizing from models of care
- Chapter 12 Pharmacological management of neuropsychiatric symptoms in people with dementia
- Chapter 13 Hospital admissions in dementia
- Chapter 14 Distress and pain in dementia
- Chapter 15 The role of the family doctor in supportive care for people with dementia
- Chapter 16 Community mental health nursing and supportive care
- Chapter 17From psychological interventions to a psychology of dementia
- Chapter 18 Supportive care: social care and social work approaches
- Chapter 19 Care homes and long-term care for people with dementia
- Chapter 20 Assisted living programmes providing supportive care for dementia
- Chapter 21 Spiritual care of people with dementia and their carers
- Chapter 22 Anticipatory and disenfranchised grief among dementia family caregivers: helping spouse and adult-child caregivers to cope
- Chapter 23 Communicating with people with dementia
- Chapter 24 Maintaining the self in dementia
- Chapter 25 Person-centred care as supportive care
- Chapter 26 Narrative, supportive care, and dementia: a preliminary exploration
- Chapter 27 Persons with severe dementia and the notion of bodily autonomy*
- Chapter 28 Advance care planning: an american view
- Chapter 29 Advance care planning and palliative care in dementia: a view from the Netherlands
- Chapter 30 Living and dying at home with dementia
- Chapter 31 Namaste care and dying in institutional settings
- Chapter 32 The principles and practice of supportive care in dementia
- Index