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Supportive care for the person with dementia$
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Julian Hughes, Mari Lloyd-Williams, and Greg Sachs

Print publication date: 2009

Print ISBN-13: 9780199554133

Published to Oxford Scholarship Online: November 2011

DOI: 10.1093/acprof:oso/9780199554133.001.0001

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Maintaining the self in dementia

Maintaining the self in dementia

(p.227) Chapter 24 Maintaining the self in dementia
Supportive care for the person with dementia

Steven R. Sabat

Oxford University Press

The selfhood of a person with dementia can be undermined not simply as a result of biological factors, but to a far greater degree by psychosocial factors. In order to support and maintain the selfhood of the person with dementia to the greatest possible degree after the diagnosis is given and for the balance of the person's life, it is crucial to understand three fundamentally important and interrelated issues that affect the person with dementia as well as his or her formal and informal carers. These are: (i) negative stereotypes, negative self-stereotypes, and stereotype threat; (ii) malignant positioning; and (iii) aspects of selfhood that are affected by both of the first two issues. This chapter addresses each issue in turn and attempts to convey the meanings of dementia to the person diagnosed, to the healthy others who are carers, and how those meanings can come to create a filter of sorts through which the world is seen by all involved.

Keywords:   dementia care, selfhood, carers, negative stereotypes, malignant positioning

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