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Supportive care for the person with dementia$
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Julian Hughes, Mari Lloyd-Williams, and Greg Sachs

Print publication date: 2009

Print ISBN-13: 9780199554133

Published to Oxford Scholarship Online: November 2011

DOI: 10.1093/acprof:oso/9780199554133.001.0001

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Narrative, supportive care, and dementia: a preliminary exploration

Narrative, supportive care, and dementia: a preliminary exploration

(p.245) Chapter 26 Narrative, supportive care, and dementia: a preliminary exploration
Supportive care for the person with dementia

Clive Baldwin

Oxford University Press

This chapter focuses on narrative supportive care, arguing that narrative is not simply an adjunct to supportive care but a defining aspect of that care. It addresses four aspects of such care which can encompass the individual, the individual within social relations, and the individual within the organization, namely: (i) maintaining narrative agency; (ii) establishing the emergent plot; (iii) a sensitivity to and an appreciation of narrative webs; and (iv) the accumulation of narrative resources. It then discusses the need for narrative literacy on the part of those providing supportive care. A narrative-based approach to supportive care can facilitate the intertwining of many aspects of life into a meaningful whole. It helps maintain a sense of Self, acknowledges and works with the web of relationships in which we all live, can incorporate the physical, emotional, mental, and spiritual, and can help all those involved navigate the waters between chaos and quest.

Keywords:   narrative, supportive care, dementia, patient care, self

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