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Supportive care for the person with dementia$
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Julian Hughes, Mari Lloyd-Williams, and Greg Sachs

Print publication date: 2009

Print ISBN-13: 9780199554133

Published to Oxford Scholarship Online: November 2011

DOI: 10.1093/acprof:oso/9780199554133.001.0001

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Huntington's disease and dementia

Huntington's disease and dementia

(p.55) Chapter 7 Huntington's disease and dementia
Supportive care for the person with dementia

Belinda Bilney

Meg E. Morris

Oxford University Press

Huntington's disease (HD) is an inherited neurodegenerative disorder for which there is currently no known cure. Disease onset usually occurs around thirty-five to forty-five years of age and may be signalled by early cognitive changes that progress to dementia; voluntary and involuntary movement disorders such as bradykinesia, akinesia, postural instability, chorea, dystonia, and dysphagia; and emotional changes such as depression, aggression, apathy, and anxiety. HD can be challenging for people with the disease and their families owing to the combination of dementia, movement disorders, and emotional changes. This chapter discusses supportive care in HD, models of supportive care, supportive care for people who are at risk or pre-symptomatic, and supportive care for people in the early, middle, or late stages of the disease.

Keywords:   neurodegenerative disorders, supportive care, Huntington's disease

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