Jump to ContentJump to Main Navigation
Advance Care Planning in End of Life Care$
Users without a subscription are not able to see the full content.

Keri Thomas and Ben Lobo

Print publication date: 2010

Print ISBN-13: 9780199561636

Published to Oxford Scholarship Online: November 2011

DOI: 10.1093/acprof:oso/9780199561636.001.0001

Show Summary Details
Page of

PRINTED FROM OXFORD SCHOLARSHIP ONLINE (oxford.universitypressscholarship.com). (c) Copyright Oxford University Press, 2021. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in OSO for personal use. date: 17 October 2021

Listening to the patient's voice

Listening to the patient's voice

(p.28) Chapter 3 Listening to the patient's voice
Advance Care Planning in End of Life Care

Heidi Macleod

David Oliver

Don Redding

Oxford University Press

This chapter looks into the detail of the patient and carer experience, looking at the Motor Neurone Disease (MND) Association, patients, and partner organizations. First it introduces a perspective of the MND Association. MND is without any effective treatment and it relentlessly robs those with it of the ability to use their limbs, speak, swallow, and finally breathe. The Motor Neurone Disease Association (MNDA) know what matters and help through a number of ways to pay attention to the detail that is essential to effective care and support when people face this aggressive neurological condition. By presenting different stories, the discussion tries to convey the importance and sometimes complexity of ‘listening to the patient's voice’. In order to make sure that Advance Care Planning for the end of life is personalized, effective and safe, one must not forget to listen, learn, and lead.

Keywords:   MNDA, motor neurone disease, care, patient's voice, end of life

Oxford Scholarship Online requires a subscription or purchase to access the full text of books within the service. Public users can however freely search the site and view the abstracts and keywords for each book and chapter.

Please, subscribe or login to access full text content.

If you think you should have access to this title, please contact your librarian.

To troubleshoot, please check our FAQs , and if you can't find the answer there, please contact us .