- Title Pages
- Foreword
- Preface
- Contributors
- Abbreviations
-
Chapter 1 Overview and introduction to Advance Care Planning -
Chapter 2 Advance Care Planning for the end of life: an overview -
Chapter 3 Listening to the patient's voice -
Chapter 4 Advance Care Planning for older people -
Chapter 5 Spiritual aspects of Advance Care Planning -
Chapter 6 Advance Care Planning: politically correct, but ethically sound? -
Chapter 7 Advance Care Planning for the end of life -
Chapter 8 The implications of the Mental Capacity Act (MCA) 2005 for Advance Care Planning and decision making -
Chapter 9 Advance Decisions to Refuse Treatment (ADRT) -
Chapter 10 The tough questions: do not attempt resuscitation discussions -
Chapter 11 Preferred priorities for care: an Advance Care Planning process -
Chapter 12 Experience of use of Advance Care Planning in care homes -
Chapter 13 Advance Care Planning in the community -
Chapter 14 ACP in hospice and specialist palliative care -
Chapter 15 Advanced Care Planning: thinking ahead for parents and children -
Chapter 16 Issues around capacity -
Chapter 17 Advance directives and Advance Care Planning: the US experience -
Chapter 18 A common sense guide to improving Advance Care Planning: from theory to practice -
Chapter 19 Advance Care Planning in Canada: past experience and current strategies -
Chapter 20 The evolution of Advance Care Planning in Australia with a focus on hospital care -
Chapter 21 Advance Care Planning discussions in Australia: the development of clinical practice guidelines -
Chapter 22 Living and dying in style: Australia—an example of ACP in action -
Chapter 23 Communication skills and Advance Care Planning -
Chapter 24 Working with local commissioners to deliver Advanced Care Planning -
Appendix 1 Useful websites and resources -
Appendix 2 Aids to communication -
Appendix 3 Guidance and useful ACP tools - Index
Listening to the patient's voice
Listening to the patient's voice
- Chapter:
- (p.28) Chapter 3 Listening to the patient's voice
- Source:
- Advance Care Planning in End of Life Care
- Author(s):
Heidi Macleod
David Oliver
Don Redding
- Publisher:
- Oxford University Press
This chapter looks into the detail of the patient and carer experience, looking at the Motor Neurone Disease (MND) Association, patients, and partner organizations. First it introduces a perspective of the MND Association. MND is without any effective treatment and it relentlessly robs those with it of the ability to use their limbs, speak, swallow, and finally breathe. The Motor Neurone Disease Association (MNDA) know what matters and help through a number of ways to pay attention to the detail that is essential to effective care and support when people face this aggressive neurological condition. By presenting different stories, the discussion tries to convey the importance and sometimes complexity of ‘listening to the patient's voice’. In order to make sure that Advance Care Planning for the end of life is personalized, effective and safe, one must not forget to listen, learn, and lead.
Keywords: MNDA, motor neurone disease, care, patient's voice, end of life
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- Title Pages
- Foreword
- Preface
- Contributors
- Abbreviations
-
Chapter 1 Overview and introduction to Advance Care Planning -
Chapter 2 Advance Care Planning for the end of life: an overview -
Chapter 3 Listening to the patient's voice -
Chapter 4 Advance Care Planning for older people -
Chapter 5 Spiritual aspects of Advance Care Planning -
Chapter 6 Advance Care Planning: politically correct, but ethically sound? -
Chapter 7 Advance Care Planning for the end of life -
Chapter 8 The implications of the Mental Capacity Act (MCA) 2005 for Advance Care Planning and decision making -
Chapter 9 Advance Decisions to Refuse Treatment (ADRT) -
Chapter 10 The tough questions: do not attempt resuscitation discussions -
Chapter 11 Preferred priorities for care: an Advance Care Planning process -
Chapter 12 Experience of use of Advance Care Planning in care homes -
Chapter 13 Advance Care Planning in the community -
Chapter 14 ACP in hospice and specialist palliative care -
Chapter 15 Advanced Care Planning: thinking ahead for parents and children -
Chapter 16 Issues around capacity -
Chapter 17 Advance directives and Advance Care Planning: the US experience -
Chapter 18 A common sense guide to improving Advance Care Planning: from theory to practice -
Chapter 19 Advance Care Planning in Canada: past experience and current strategies -
Chapter 20 The evolution of Advance Care Planning in Australia with a focus on hospital care -
Chapter 21 Advance Care Planning discussions in Australia: the development of clinical practice guidelines -
Chapter 22 Living and dying in style: Australia—an example of ACP in action -
Chapter 23 Communication skills and Advance Care Planning -
Chapter 24 Working with local commissioners to deliver Advanced Care Planning -
Appendix 1 Useful websites and resources -
Appendix 2 Aids to communication -
Appendix 3 Guidance and useful ACP tools - Index
