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Advance Care Planning in End of Life Care

Keri Thomas and Ben Lobo

Abstract

Advance Care Planning is an essential part of the new NHS National Programme on End-of-Life Care, aiming to improve the chances of ‘a good death’ by discussing and planning how this might be managed. This book helps readers explore a wide range of issues and practicalities in providing Advance Care Planning (ACP) for their patients nearing the end of life. This book takes a comprehensive look at the subject of ACP; frames the purpose, process, and outcomes; and includes contributions from experts from around the world.

Keywords: Advance Care Planning, NHS, good death, ACP, end of life

Bibliographic Information

Print publication date: 2010 Print ISBN-13: 9780199561636
Published to Oxford Scholarship Online: November 2011 DOI:10.1093/acprof:oso/9780199561636.001.0001

Authors

Affiliations are at time of print publication.

Keri Thomas, editor
Clinical Lead for the National Gold Standards Framework Centre, Honorary Professor in End of Life Care, University of Birmingham, UK, Royal College of General Practitioners Clinical Champion in End of Life Care, and Clinical Director for Omega, the National Association of End of Life Care, UK

Ben Lobo, editor
National Clinical Lead for Advance Decisions to Refuse Treatment; Medical Director; and Consultant Physician and Community Geriatrician, Derbyshire Community Health Service, Derbyshire County PCT, UK

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Contents

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Front Matter

Title Pages

Foreword

Preface

Contributors

Abbreviations

Section 1 Introduction to Advance Care Planning: why do it?

Chapter 1 Overview and introduction to Advance Care Planning

Keri Thomas

Chapter 2 Advance Care Planning for the end of life: an overview

Jane Seymour, and Gillian Horne

Chapter 3 Listening to the patient's voice

Heidi Macleod, David Oliver, and Don Redding

Chapter 4 Advance Care Planning for older people

Simon Conroy

Chapter 5 Spiritual aspects of Advance Care Planning

Max Watson

Chapter 6 Advance Care Planning: politically correct, but ethically sound?

Rob George, and Tim Harlow

Section 2 Context in the UK

Chapter 7 Advance Care Planning for the end of life

Claire Henry, and Sheila Joseph

Chapter 8 The implications of the Mental Capacity Act (MCA) 2005 for Advance Care Planning and decision making

Simon Chapman, and Andrew Makin

Chapter 9 Advance Decisions to Refuse Treatment (ADRT)

Ben Lobo

Chapter 10 The tough questions: do not attempt resuscitation discussions

Madeline Bass

Section 3 The UK experience of ACP: what's happening now?

Chapter 11 Preferred priorities for care: an Advance Care Planning process

Les Storey, and Adrienne Betteley

Chapter 12 Experience of use of Advance Care Planning in care homes

Deborah Holman, Nikki Sawkins, and Jo Hockley

Chapter 13 Advance Care Planning in the community

Bruce Mason, Dierdra Sives, and Scott A Murray

Chapter 14 ACP in hospice and specialist palliative care

Simon Noble

Chapter 15 Advanced Care Planning: thinking ahead for parents and children

Angela Thompson

Chapter 16 Issues around capacity

Lynn Gibson, Dorothy Matthews, and Claud Regnard

Section 4 International experience of ACP: what can we learn from other countries?

Chapter 17 Advance directives and Advance Care Planning: the US experience

Anne M Wilkinson

Chapter 18 A common sense guide to improving Advance Care Planning: from theory to practice

Anne M Wilkinson, and Joanne Lynn

Chapter 19 Advance Care Planning in Canada: past experience and current strategies

AnnMarie Nielsen, and Sharon Baxter

Chapter 20 The evolution of Advance Care Planning in Australia with a focus on hospital care

William Silvester, and Karen M Detering

Chapter 21 Advance Care Planning discussions in Australia: the development of clinical practice guidelines

Josephine M Clayton

Chapter 22 Living and dying in style: Australia—an example of ACP in action

Eric Fairbank

Section 5 Practicalities and getting going

Chapter 23 Communication skills and Advance Care Planning

Jackie Beavan, Carolyn Fowler, and Sarah Russell

Chapter 24 Working with local commissioners to deliver Advanced Care Planning

Jennifer Stothard

End Matter

Appendix 1 Useful websites and resources

Appendix 2 Aids to communication

Appendix 3 Guidance and useful ACP tools

Index