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Human Tissue ResearchA European perspective on the ethical and legal challenges$
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Christian Lenk, Nils Hoppe, Katharina Beier, and Claudia Wiesemann

Print publication date: 2011

Print ISBN-13: 9780199587551

Published to Oxford Scholarship Online: May 2011

DOI: 10.1093/acprof:oso/9780199587551.001.0001

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PRINTED FROM OXFORD SCHOLARSHIP ONLINE (oxford.universitypressscholarship.com). (c) Copyright Oxford University Press, 2021. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in OSO for personal use. date: 03 December 2021

Research with human biological material and personal data in biobanks: legal and regulatory framework in Switzerland

Research with human biological material and personal data in biobanks: legal and regulatory framework in Switzerland

Chapter:
(p.99) Chapter 10 Research with human biological material and personal data in biobanks: legal and regulatory framework in Switzerland
Source:
Human Tissue Research
Author(s):

Bianka S. Dörr

Publisher:
Oxford University Press
DOI:10.1093/acprof:oso/9780199587551.003.0010

This chapter focuses on the present and future Swiss legal and regulatory framework for human tissue research. As to date there is no uniform legislation or regulation of research with human biological material and personal data at federal level in Switzerland. Since 2006, the Swiss legislator has been working on the implementation of a federal act regarding research with humans (Humanforschungsgesetz); the draft bill of the act on research with humans has recently been published. The chapter describes and critically evaluates these regulatory activities and also gives a brief overview of existing biobanks and networks in Switzerland. It concludes that the proposed Swiss regulatory framework is a first step towards finding an appropriate balance between the interests of scientific knowledge, the law, and public welfare on one hand and protection of personality of participating persons on the other.

Keywords:   human tissue research, human biological material, personal data, biobanks, regulatory framework, legal framework, Swiss legal framework, Humanforschungsgesetz

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