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Human Tissue ResearchA European perspective on the ethical and legal challenges$
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Christian Lenk, Nils Hoppe, Katharina Beier, and Claudia Wiesemann

Print publication date: 2011

Print ISBN-13: 9780199587551

Published to Oxford Scholarship Online: May 2011

DOI: 10.1093/acprof:oso/9780199587551.001.0001

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PRINTED FROM OXFORD SCHOLARSHIP ONLINE (oxford.universitypressscholarship.com). (c) Copyright Oxford University Press, 2021. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in OSO for personal use. date: 21 January 2022

Risky business: re-evaluating participant risk in biobanking 1

Risky business: re-evaluating participant risk in biobanking 1

(p.35) Chapter 4 Risky business: re-evaluating participant risk in biobanking1
Human Tissue Research

Nils Hoppe (Contributor Webpage)

Oxford University Press

Participation in research and therapy in most cases entails a certain degree of risk for the participants. Traditionally, the notion of risk in this setting has been taken to mean risk of physical harm that may result. A variable yardstick of the level of permissible risk has been used in the past to determine an individual's ability to consent validly to their participation. In the area of research using biobanks (i.e., organized collections of biological samples and various forms of associated data, including, but not limited to, genetic data), the conventional notions of risk may have to be reconsidered in the light of informational, psychiatric, economic, and social risks. This chapter addresses the different dimensions in relation to risk models which may have to be re-evaluated in the context of biobanking.

Keywords:   biobanking, risk, genetic data, ethics, law, consent, medical data

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