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Human Tissue ResearchA European perspective on the ethical and legal challenges$
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Christian Lenk, Nils Hoppe, Katharina Beier, and Claudia Wiesemann

Print publication date: 2011

Print ISBN-13: 9780199587551

Published to Oxford Scholarship Online: May 2011

DOI: 10.1093/acprof:oso/9780199587551.001.0001

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PRINTED FROM OXFORD SCHOLARSHIP ONLINE (oxford.universitypressscholarship.com). (c) Copyright Oxford University Press, 2021. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in OSO for personal use. date: 23 January 2022

Taking solidarity seriously: do biobank institutions have a moral obligation to inform their patients about incidental health findings?

Taking solidarity seriously: do biobank institutions have a moral obligation to inform their patients about incidental health findings?

Chapter:
(p.55) Chapter 6 Taking solidarity seriously: do biobank institutions have a moral obligation to inform their patients about incidental health findings?
Source:
Human Tissue Research
Author(s):

Christian Lenk

Publisher:
Oxford University Press
DOI:10.1093/acprof:oso/9780199587551.003.0006

It is a principle of research ethics, which also found expression in §30 of the Declaration of Helsinki, that every patient who participates in a research study should have access to the newly developed therapeutic and diagnostic measures in the end. However, it is doubtful in the case of medical studies in the framework of biobank institutions what kind of benefit participating donors of tissue or body material could have. One obvious possibility most participants of such studies would probably be interested in is the feedback of important individual health findings. This chapter compares legal, ethical, and institutional guidelines from different European countries and discusses the existing approaches in the framework of solidarity, which is often mentioned as a justification for research in population biobanks.

Keywords:   biobanks, research ethics, solidarity, patient rights, biobank governance, feedback

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