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A Public Health Perspective on End of Life Care$
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Joachim Cohen and Luc Deliens

Print publication date: 2012

Print ISBN-13: 9780199599400

Published to Oxford Scholarship Online: May 2012

DOI: 10.1093/acprof:oso/9780199599400.001.0001

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End-of-life care for patients with intellectual disabilities

End-of-life care for patients with intellectual disabilities

(p.173) Chapter 15 End-of-life care for patients with intellectual disabilities
A Public Health Perspective on End of Life Care

Irene Tuffrey-Wijne

Annemieke Wagemans

Leopold Curfs

Oxford University Press

The provision of end-of-life care for people with intellectual disabilities is becoming an issue of increasing concern. This is an ageing population. Comprehensive and up-to-date morbidity and mortality data are lacking, mostly due to methodological problems (including the lack of a data base of people with intellectual disabilities in many countries). However, it is evident that with increased longevity among those with intellectual disabilities there is also a rising incidence of life-limiting illnesses such as cancer or dementia. How are the end-of-life care needs of this group being met? Are they able to access appropriate palliative care services when they need it? This chapter focuses on the challenge facing those with intellectual disabilities in achieving equal access to palliative or end-of-life care services.

Keywords:   disabled patients, palliative care services, access to care, intellectually disabled

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