Jump to ContentJump to Main Navigation
Understanding and Using Health ExperiencesImproving patient care$
Users without a subscription are not able to see the full content.

Sue Ziebland, Angela Coulter, Joseph D. Calabrese, and Louise Locock

Print publication date: 2013

Print ISBN-13: 9780199665372

Published to Oxford Scholarship Online: May 2013

DOI: 10.1093/acprof:oso/9780199665372.001.0001

Show Summary Details
Page of

PRINTED FROM OXFORD SCHOLARSHIP ONLINE (oxford.universitypressscholarship.com). (c) Copyright Oxford University Press, 2021. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in OSO for personal use. date: 23 January 2021

Story gathering: collecting and analysing spontaneously-shared stories as research data

Story gathering: collecting and analysing spontaneously-shared stories as research data

(p.60) Chapter 7 Story gathering: collecting and analysing spontaneously-shared stories as research data
Understanding and Using Health Experiences

Trisha Greenhalgh

Oxford University Press

This chapter, illustrated by a worked example of diabetes self-management, describes an approach in which illness narratives are collected to extend understanding of the lived experience of the condition and inform the design of education and support programmes. In the example, we describe how informal, unstructured story-sharing groups were held for 82 participants in six different ethnic languages, facilitated by bilingual health advocates. Some but not all stories were translated by the facilitator or by members of the groups. Researchers sat in on groups, made contemporaneous notes and typed these up afterwards. We collected and analysed around 300 story-fragments, producing a new theoretical model of how the story form enables people to make sense of abstract diabetes knowledge and apply it to their own lives and lifestyles. Particular ‘storylines’, which were common across the ethnic groups studied, gave the biomedical tasks of self-management both social meaning and moral worth, allowing them to be embraced (to a greater or lesser extent) in personal and family routines. Using this empirical example, we consider the strengths and limitations of naturalistic story-gathering as a data collection method in qualitative research

Keywords:   Story-gathering, Naturalistic research, Self-management, Patient education

Oxford Scholarship Online requires a subscription or purchase to access the full text of books within the service. Public users can however freely search the site and view the abstracts and keywords for each book and chapter.

Please, subscribe or login to access full text content.

If you think you should have access to this title, please contact your librarian.

To troubleshoot, please check our FAQs , and if you can't find the answer there, please contact us .