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The Future of BioethicsInternational Dialogues$
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Akira Akabayashi

Print publication date: 2014

Print ISBN-13: 9780199682676

Published to Oxford Scholarship Online: January 2014

DOI: 10.1093/acprof:oso/9780199682676.001.0001

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Therapy, Enhancement, and Eugenics

(p.163) 4.4 Commentary
The Future of Bioethics

D. Gareth Jones

Oxford University Press

Enhancement encompasses many procedures, but frequently one does not know what counts as therapy, and therefore are unclear when one is moving into enhancement. To address this issue the role of research and therapy is considered in the management of cystic fibrosis. What is the “best possible life” for a child with the “wrong” genetic make-up? Options facing prospective parents are considered, including what enhancement might mean in these circumstances. Issues that emerge include the unclear distinction between certain of the options, resource issues, liberty of the parents against liberty of the children, what counts as normal, and the social and political consequences of utilizing biomedical technologies. Underlying many of these issues is the question of the freedom of those who have been enhanced.

Keywords:   Enhancement, therapy, cystic fibrosis, genetic make-up

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