The Ethical and Social Aspects of Genetic Information and Personalized Medical Genomics
In recent years, several large-scale projects have focused on collecting personal genomic information with the hope of clinical application. However, social and ethical problems surrounding the collection as well as the returning of this information are still vastly under appreciated. Maschke highlights several problems present in these projects, particularly with regard to socio-demographic issues involved in collecting genetic information. Specifically, she examines participant perception of disease risk and their behavior related to health care after receiving their genetic information. These questions lead us to consider the process of refining participant perception and behavior, as well as the development of social architectural frameworks for personalized medical genomics.
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