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The Future of BioethicsInternational Dialogues$
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Akira Akabayashi

Print publication date: 2014

Print ISBN-13: 9780199682676

Published to Oxford Scholarship Online: January 2014

DOI: 10.1093/acprof:oso/9780199682676.001.0001

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PRINTED FROM OXFORD SCHOLARSHIP ONLINE (oxford.universitypressscholarship.com). (c) Copyright Oxford University Press, 2021. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in OSO for personal use. date: 24 October 2021

Commentary

Commentary

The Ethical and Social Aspects of Genetic Information and Personalized Medical Genomics

Chapter:
(p.295) 7.3 Commentary
Source:
The Future of Bioethics
Author(s):

Koji Ota

Publisher:
Oxford University Press
DOI:10.1093/acprof:oso/9780199682676.003.0034

In recent years, several large-scale projects have focused on collecting personal genomic information with the hope of clinical application. However, social and ethical problems surrounding the collection as well as the returning of this information are still vastly under appreciated. Maschke highlights several problems present in these projects, particularly with regard to socio-demographic issues involved in collecting genetic information. Specifically, she examines participant perception of disease risk and their behavior related to health care after receiving their genetic information. These questions lead us to consider the process of refining participant perception and behavior, as well as the development of social architectural frameworks for personalized medical genomics.

Keywords:   Medical genomics, genetic information, disease risks, health care behavior, sociodemography

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