Jump to ContentJump to Main Navigation
The Future of BioethicsInternational Dialogues$
Users without a subscription are not able to see the full content.

Akira Akabayashi

Print publication date: 2014

Print ISBN-13: 9780199682676

Published to Oxford Scholarship Online: January 2014

DOI: 10.1093/acprof:oso/9780199682676.001.0001

Show Summary Details
Page of

PRINTED FROM OXFORD SCHOLARSHIP ONLINE (oxford.universitypressscholarship.com). (c) Copyright Oxford University Press, 2021. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in OSO for personal use. date: 28 October 2021



Gatekeeping Access to Genetic Information: A Response to “Genetic Research to Facilitate Personalized Medicine: Ethical and Policy Challenges”

(p.298) 7.4 Commentary
The Future of Bioethics

Douglas Sipp

Oxford University Press

In this commentary in response to Maschke’s article, the author reviews the arguments made for and against the gatekeeping approach to access to personal genetic information by human research volunteers. While informed consent may be a sufficient condition for limiting donor access to their own genetic information, the rapid evolution of sequencing technologies may make the gatekeeping approach more untenable in the near future.

Keywords:   genetics research, human donors, information access

Oxford Scholarship Online requires a subscription or purchase to access the full text of books within the service. Public users can however freely search the site and view the abstracts and keywords for each book and chapter.

Please, subscribe or login to access full text content.

If you think you should have access to this title, please contact your librarian.

To troubleshoot, please check our FAQs , and if you can't find the answer there, please contact us .