Gatekeeping Access to Genetic Information: A Response to “Genetic Research to Facilitate Personalized Medicine: Ethical and Policy Challenges”
In this commentary in response to Maschke’s article, the author reviews the arguments made for and against the gatekeeping approach to access to personal genetic information by human research volunteers. While informed consent may be a sufficient condition for limiting donor access to their own genetic information, the rapid evolution of sequencing technologies may make the gatekeeping approach more untenable in the near future.
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