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The Future of BioethicsInternational Dialogues$
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Akira Akabayashi

Print publication date: 2014

Print ISBN-13: 9780199682676

Published to Oxford Scholarship Online: January 2014

DOI: 10.1093/acprof:oso/9780199682676.001.0001

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PRINTED FROM OXFORD SCHOLARSHIP ONLINE (oxford.universitypressscholarship.com). (c) Copyright Oxford University Press, 2021. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in OSO for personal use. date: 28 October 2021

Response to Commentaries

Response to Commentaries

Chapter:
(p.301) 7.5 Response to Commentaries
Source:
The Future of Bioethics
Author(s):

Karen J. Maschke

Publisher:
Oxford University Press
DOI:10.1093/acprof:oso/9780199682676.003.0036

An underlying rationale for limitations on individuals’ access to their genetic research results is the concern that individuals might use their genetic information in ways that could be harmful to them. For example, an individual might engage in risky behaviors she otherwise would not undertake because she misinterpreted genetic risk information as determinative rather than as probabilistic. Yet some commentators – as well as some research participants – contend that individuals have a right to all of “their own genetic information.” Thus, it remains unclear whether people will continue to participate in genetic research initiatives that use a conditional-return approach.

Keywords:   Genetic research, genomic research, biobanks, return of genetic research results, return of genomic research results, genomic-based medicine, personalized medicine

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