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The Future of BioethicsInternational Dialogues$
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Akira Akabayashi

Print publication date: 2014

Print ISBN-13: 9780199682676

Published to Oxford Scholarship Online: January 2014

DOI: 10.1093/acprof:oso/9780199682676.001.0001

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PRINTED FROM OXFORD SCHOLARSHIP ONLINE (oxford.universitypressscholarship.com). (c) Copyright Oxford University Press, 2021. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in OSO for personal use. date: 24 October 2021

Primary Topic Article

Primary Topic Article

Taking Seriously Ill People Seriously: Ethics and Policy Dimensions of the Chronic Disease/End-of-Life Care Continuum

Chapter:
(p.595) 17.1 Primary Topic Article
Source:
The Future of Bioethics
Author(s):

Nancy Berlinger

Michael K. Gusmano

Publisher:
Oxford University Press
DOI:10.1093/acprof:oso/9780199682676.003.0082

Most individuals in the US and other developed nations die of chronic progressive diseases, such as cancer, heart disease, or dementia. These individuals also live with these diseases for some period before a disease process enters its terminal phase and a patient’s health care needs are identified in terms of end-of-life care. The language of “chronicity” is used differently with respect to these major disease trajectories, and even within them. How we use language to define problems and to describe our professional and societal accountability to patients with respect to these problems, and how we use policy to create, or fail to create, structures and conditions to support persons who are living with chronic progressive diseases that are likely to result in death, will be the topic of this paper. The paper will focus on the US context, with particular attention to cancer care, and with comparisons to non-US contexts.

Keywords:   Cancer, chronicity, end of life, terminal illness

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