Jump to ContentJump to Main Navigation
Life to be LivedChallenges and choices for patients and carers in life-threatening illnesses$
Users without a subscription are not able to see the full content.

Catherine Proot and Michael Yorke

Print publication date: 2013

Print ISBN-13: 9780199685011

Published to Oxford Scholarship Online: January 2014

DOI: 10.1093/acprof:oso/9780199685011.001.0001

Show Summary Details
Page of

PRINTED FROM OXFORD SCHOLARSHIP ONLINE (oxford.universitypressscholarship.com). (c) Copyright Oxford University Press, 2020. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in OSO for personal use. date: 19 October 2020

Demands on the family

Demands on the family

(p.39) Chapter 5 Demands on the family
Life to be Lived

Catherine Proot

Michael Yorke

Oxford University Press

This chapter title sums up the situations for the family of a very sick person. Demands are plentiful on emotions, on time, energy, skills and domestic finance. The bonds of love and friendship may be stretched but most people accept their importance and relevance. A vivid example of an experience of diagnosis highlights the carer’s needs and feelings which are so easily overlooked when the patient becomes the primary focus of attention. The practical, emotional and financial cost involved in the logistical challenges of accommodating medical schedules, travel, family routines, and equipment which undermines the sense of the ‘home’ are discussed. Carer isolation, depression and breakdown are considered. The necessity of teamwork among family and friends and with outside professionals is stressed. This does not always come naturally due to a personal sense of duty and anxiety about leaving ‘their’ patient, but we consider it vital not only for the carer but also for the patient.

Keywords:   shared diagnosis, logistical issues, financial demands, teamwork, carer needs, carer burden, (emotional) cost of caring, carer isolation

Oxford Scholarship Online requires a subscription or purchase to access the full text of books within the service. Public users can however freely search the site and view the abstracts and keywords for each book and chapter.

Please, subscribe or login to access full text content.

If you think you should have access to this title, please contact your librarian.

To troubleshoot, please check our FAQs , and if you can't find the answer there, please contact us .