The Ethics of Pediatric Research
David Wendler
Abstract
Millions of children suffer from diseases and illnesses who do not have adequate treatment. And many other children are harmed by medicines intended to help them. To protect and help these children society needs to conduct pediatric research. Yet, critics and courts have argued that it is unethical to expose children to research risks for the benefit of others. They argue that this practice violates our obligation to protect children and exploits them for the benefit of others. In this way, clinical research with children poses what appears to be an irresolvable dilemma: either we can protect ... More
Millions of children suffer from diseases and illnesses who do not have adequate treatment. And many other children are harmed by medicines intended to help them. To protect and help these children society needs to conduct pediatric research. Yet, critics and courts have argued that it is unethical to expose children to research risks for the benefit of others. They argue that this practice violates our obligation to protect children and exploits them for the benefit of others. In this way, clinical research with children poses what appears to be an irresolvable dilemma: either we can protect pediatric subjects from exploitation or we can protect pediatric patients from dangerous medicines, but not both. The present work, which is the first to systematically evaluate this dilemma, offers an original justification for pediatric research based on an in-depth analysis of when it is in our interests to help others.
Keywords:
children,
research,
human interests,
autonomy,
vulnerable subjects,
pediatric research,
contribution,
well-being,
exploitation
Bibliographic Information
Print publication date: 2010 |
Print ISBN-13: 9780199730087 |
Published to Oxford Scholarship Online: May 2010 |
DOI:10.1093/acprof:oso/9780199730087.001.0001 |