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Speaking for OurselvesConversations on Life, Music, and Autism$
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Michael B. Bakan

Print publication date: 2018

Print ISBN-13: 9780190855833

Published to Oxford Scholarship Online: July 2018

DOI: 10.1093/oso/9780190855833.001.0001

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PRINTED FROM OXFORD SCHOLARSHIP ONLINE (oxford.universitypressscholarship.com). (c) Copyright Oxford University Press, 2021. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in OSO for personal use. date: 16 June 2021

Amy Sequenzia

Amy Sequenzia

(p.201) Chapter 10 Amy Sequenzia
Speaking for Ourselves

Michael B. Bakan

Oxford University Press

Amy Sequenzia is a non-speaking autistic woman with cerebral palsy and seizure disorder, but the last thing she needs is your pity and the last thing she wants is to be your “inspiration.” Amy is proud of who she is: a writer, an activist, a difference maker. And she is also proudly autistic, to the point that when asked, “If you could wave a magic wand and make your autism ‘disappear,’ would you?” she replies, “I would break the wand before anyone could wave it.” Amy has synesthesia and experiences music as color. Music also enables her to experience bodily sensations that she claims would otherwise be unavailable to her. “I am usually not very aware of my body,” she writes. “To simply get up from a chair is sometimes hard, as if my body forgets how to move . . . . So when I feel the music inside my body, when I feel my blood running with the music, it is an amazing thing.”

Keywords:   non-speaking autistic, low-functioning autism, facilitated communication, executive function, stimming, synesthesia, embodiment, autistic socialization, Headstones (band), Society for Disability Studies

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