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Aniridia and WAGR SyndromeA Guide for Patients and Their Families$
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Jill Ann Nerby and Jessca Otis

Print publication date: 2010

Print ISBN-13: 9780195389302

Published to Oxford Scholarship Online: November 2020

DOI: 10.1093/oso/9780195389302.001.0001

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PRINTED FROM OXFORD SCHOLARSHIP ONLINE (oxford.universitypressscholarship.com). (c) Copyright Oxford University Press, 2021. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in OSO for personal use. date: 24 October 2021



(p.14) 2 Inspirations
Aniridia and WAGR Syndrome

Jessica J. Otis

Oxford University Press

This chapter is a collection of stories from those who do not let anything keep them from achieving their goals and who inspire us. These individuals show us there is hope and that anything is possible. My name is Eric, and I am 27 years old. I was born with familial (hereditary) aniridia. I also have nystagmus, beginnings of a cataract in my right eye, lens implant in my left eye, and corneal keratopathy in both eyes (but it is worse in my left eye). I am married to my lovely wife, Amber, and we have four children. They are: Joseph (ten years old), Sarah (seven years old), Aniston (four years old), and Christopher (two years old). The two oldest have normal vision and the two youngest have aniridia (how’s that for the law of randomization?). Currently, I work as a research assistant at the University of Florida as part of my doctoral degree. I also own my own company where I work as an occupational therapist with blind and low-vision individuals of all ages. Initially when I went to occupational therapy school, I was not interested in working with people who have vision impairments. Instead, I specialized in working with older adults. After working in the field for several years with older adults, I began to notice that many of my elderly patients had vision problems. Although I grew up with a visual impairment, I did not feel professionally qualified to address their vision issues because learning how to adapt to a visual impairment is different for someone born with a visual impairment than someone who acquires a visual impairment later in life. So I went back to school to gain additional training in working with people who have visual impairments. Part of my job as an occupational therapist is to evaluate patients for specific assistive-technology needs, recommend products that would increase their independence, and to teach patients with multiple disabilities how to use these devices.

Keywords:   Advocacy, of aniridia patients, Aniridia Foundation International (AFI), Blind and Low Vision Rehabilitation Services & Consulting, Inc, Inspirations, Price Vision Group

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