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Aniridia and WAGR Syndrome – A Guide for Patients and Their Families - Oxford Scholarship Online
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Aniridia and WAGR Syndrome: A Guide for Patients and Their Families

Jill Ann Nerby and Jessca Otis

Abstract

Our hope is to enlighten and encourage those affected by aniridia and WAGR Syndrome by providing patient support and medical information. There is information to inform parents, teachers, doctors, employers, and the public about aniridia and what it is like to live with it. Several renowned doctors contribute medical chapters. Personal experiences from individuals with aniridia and parents with children with aniridia provide encouragement. Contact information for Aniridia Foundation International (AFI) is included. When a child is born without a complete iris, it is usually a symptom of a broa ... More

Bibliographic Information

Print publication date: 2010 Print ISBN-13: 9780195389302
Published to Oxford Scholarship Online: November 2020 DOI:10.1093/oso/9780195389302.001.0001

Authors

Affiliations are at time of print publication.

Jill Ann Nerby, editor

Jessca Otis, editor

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Contents

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1 Aniridia, WAGR Syndrome, and Associated Conditions*

Lama A. Al-Aswad and Lookjan Riansuwan

2 Inspirations

Jessica J. Otis

3 Aniridia—Epidemiology and Genetics

Anil K. Mandal and Harsha B. L. Rao

6 Cornea and Lens Problems in Aniridia

Edward J. Holland and Mayank Gupta

7 Low Vision and Aniridia

Jennifer K. Bulmann

8 Psychological Support

Mark Pishotta and Alison Krangel

9 Parents’ Experiences

Jessica J. Otis

10 Parents’ and Families’ Guide

Jessica J. Otis and James D. Lauderdale

11 Teachers’ and School Administrators’ Guide

Jessica J. Otis and Jill Ann Nerby

13 Other Support Services

Jessica J. Otis

End Matter