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Advance Care Planning in End of Life Care$
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Keri Thomas, Ben Lobo, and Karen Detering

Print publication date: 2017

Print ISBN-13: 9780198802136

Published to Oxford Scholarship Online: January 2018

DOI: 10.1093/oso/9780198802136.001.0001

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PRINTED FROM OXFORD SCHOLARSHIP ONLINE (oxford.universitypressscholarship.com). (c) Copyright Oxford University Press, 2020. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in OSO for personal use. date: 30 November 2020

Advanced care planning: thinking ahead for parents, carers, children, and young people

Advanced care planning: thinking ahead for parents, carers, children, and young people

Chapter:
(p.170) Chapter 16 Advanced care planning: thinking ahead for parents, carers, children, and young people
Source:
Advance Care Planning in End of Life Care
Author(s):

Angela Thompson

Publisher:
Oxford University Press
DOI:10.1093/oso/9780198802136.003.0016

Advance care planning (ACP) in paediatrics applies from the diagnosis of a life-limiting/life-threatening condition onwards. It encompasses the management of intermittent potentially reversible episodes through to end-of-life care in keeping with the child’s best interest. It is an active approach to managing care and acknowledges the child’s and family’s broader social, emotional, and spiritual needs and keeps the child central and paramount to all planning. It requires transparent discussions and effectively documented agreements that are well communicated, readily accessible, and immediately identifiable. It is essential to regularly review and amend as necessary. They describe the care agreed at that point in time in the child’s best interest, in line with RCPCH guidance. Challenges may particularly occur at the time of transition to adult services.

Keywords:   paediatric, planning, end of life, advance care planning, anticipatory, partnership, transition, documentation, purple

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