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Advance Care Planning in End of Life Care$
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Keri Thomas, Ben Lobo, and Karen Detering

Print publication date: 2017

Print ISBN-13: 9780198802136

Published to Oxford Scholarship Online: January 2018

DOI: 10.1093/oso/9780198802136.001.0001

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Advance care planning and people with dementia

Advance care planning and people with dementia

(p.181) Chapter 17 Advance care planning and people with dementia
Advance Care Planning in End of Life Care

Karen Harrison Dening

Oxford University Press

Advance care planning (ACP) is widely recognised as a process to enable an individual’s preferences and wishes for palliative and end-of-life care to be recognized at a time when they no longer have the capacity to make such ‘real time’ and autonomous decisions. In dementia, it is essential that ACP be offered early in the diagnostic process and supported when the person still has the ability to do so. Often decisions about end-of-life care for a person with dementia are made in the later stages of the illness, at a point of transition or crisis and with the absence of a clear understanding of their wishes. Clinicians may then turn to family members in the assumption that they know what these would be, however, this is often not the case which can add undue pressure to families in distressing circumstances.

Keywords:   dementia, advance care planning, autonomy, family decision making, family members, clinicians

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